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Breast Cancer Stories
Stories, sidenotes, rants, & raves.


A Pink Story About Breast Cancer

One of my favorite aspects of my work is when someone shares their story with me.  Thank you, Amy. I know your words will help inspire others diagnosed with this disease.  I hate pink; always have. I always thought it was too foofy, too predictable, too 'girly.' Then...

On Death, Life, Vulnerability And Creativity

vul·ner·a·ble ˈvəln(ə)rəb(ə)l/ What I become when my friend Jennifer invites me to and holds my hand while doing so as only a friend can do. Join me as I speak about myself, and living with breast cancer. I lessen my grip on the words hiding in the dark; words that on...

How to Talk to Kids about a Breast Cancer Diagnosis

How do we raise the issue of breast cancer to children without getting them too scared? A few years ago, breast cancer advocates Bob and Linda Carey were trying to create a “Ballerina” image for breast cancer awareness in Northern Michigan when a uniform police...

Don’t judge breast cancer patients by how they look.

Meet this Week's Metastatic Breast Cancer Hero: Maggie the 'Bald Ballerina' We hear so many comments about what someone "should look like" while they are in treatment for breast cancer. Does it make it easier to avoid a hard conversation? Or that awkward silence when...

Behind the Scenes
The stories behind the images


Behind the Scenes: Gazebo. Frankenmuth, Michigan.

Raising Breast Cancer Awareness One Image at a Time... Scenario:  Wonderful park in Northern Michigan. Detective and a uniform police officer walk over the hill and approach Linda and I. Detective: What are you doing here? Me: Making a photograph for an art project I...

Bob Carey’s Ice Bucket Challenge for ALS

Bob was challenged by our good friend Leslye to the Ice Bucket Challenge to raise awareness for ALS.  We were happy to support awareness for an important cause... Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive...

Behind the Scenes: a Little Boat for Breast Cancer Awareness

The Making of "Little Boat" in Martha's Vineyard at Black Dog docks.  This  one was not taken using the remote!!!  Here's the story... Every year one of my best buddies, Doc does what he calls his "east coast walk about". He flies from West to the East Coast and...

Caregiver Stories
Support & Inspiration


Honoring Metastatic Breast Cancer Patients & their Families

Introducing Life BEYOND Breast Cancer It took me all day to find the words to introduce a new section on our website called Life BEYOND Breast Cancer. It isn’t easy to look at the hardest part about “living” with this disease in the face, but as advocates and friends,...

Poetry: Sinner and Saint

Someone since has sinned - Who’s a saint, Who’s a sane man. Shouting profanities at his misfortune Jesting, crossing himself in a bathhouse. He’s Jewish. Someone crosses a street Seriously contemplating sinning Coming home, shirt thrown sloppy to the side Hitting a...

Poetry: The Veil

I am a veil, A sheath of newness and despair, A film of shadow and of light, A cover not quite there. I fasten readily to hair, To hats of wool and crowns of gold. I dress the plain, adorn the rich, Praise youth and hide the old. And whether it is warm or cold I'm...

Poetry: How Long Will I Run?

‘Til tide’s edge touches sand Or beyond it, ankle-deep? Will it roll in Or ebb out? Will it slap me Or dupe me, send me chasing it? And the current – Will I feebly float or will my feet be knocked from under me? Under me. Down…under water, Out to sea… How long will I...

Get Help
Resources for Breast Cancer Patients 


Getting Disability Help When Diagnosed with Breast Cancer

If you or someone you love has been diagnosed with breast cancer, there may be resources available for your family. Advanced, recurrent, and treatment resistant forms of breast cancer “automatically” meet the Social Security Administration’s (SSA) requirements for...

Getting Help Through The Tutu Project

The Tutu Project awarded grants based on a non-profit organization’s alignment with the program’s mission, which is to provide financial support and counseling, helping to relieve the financial and emotional burdens that come with breast cancer diagnoses.  While we do...

Metastatic Breast Cancer
Education & Advocacy


Honoring Metastatic Breast Cancer Patients & their Families

Introducing Life BEYOND Breast Cancer It took me all day to find the words to introduce a new section on our website called Life BEYOND Breast Cancer. It isn’t easy to look at the hardest part about “living” with this disease in the face, but as advocates and friends,...

FDA Grants Breakthrough Therapy Designation to Daiichi Sankyo’s DS-8201 for HER2-Positive Metastatic Breast Cancer

FDA Grants Breakthrough Therapy Designation to Daiichi Sankyo’s DS-8201 for HER2-Positive Metastatic Breast Cancer.
From: PR Newswire — Breakthrough Therapy designation received for the treatment of patients with HER2-positive, locally advanced or metastatic breast cancer who have been treated with trastuzumab and pertuzumab and have disease progression after ado-trastuzumab emtansine (T-DM1) — HER2-positive metastatic breast cancer often advances to the point where no currently approved HER2-targeted treatments continue to control the disease — Designation based on preliminary clinical evidence highlights that DS-8201 has the potential to offer substantial clinical benefit to patients with a high unmet medical need Daiichi Sankyo Company, Limited (hereafter, Daiichi Sankyo) today announced that the U.S. Food and Drug Administration (FDA) has granted Breakthrough Therapy designation to DS-8201, an investigational HER2-targeting antibody drug conjugate (ADC), for the treatment of patients with HER2-positive, locally advanced or metastatic breast cancer who have been treated with trastuzumab and pertuzumab and have disease progression after ado-trastuzumab emtansine (T-DM1).
Currently, there is no FDA-approved therapy for patients with HER2-positive metastatic breast cancer with disease progression following treatment with other HER2-targeting agents trastuzumab, pertuzumab and T-DM1.
“The Breakthrough Therapy designation for DS-8201 in HER2-positive metastatic breast cancer acknowledges the unmet medical need these patients face when currently approved treatments no longer control their disease,” said Antoine Yver, MD, MSc, Executive Vice President and Global Head, Oncology Research and Development, Daiichi Sankyo.
“We remain committed to rapidly progressing the development of DS-8201 and look forward to working closely with the FDA to potentially bring this new treatment option to patients with metastatic breast cancer as quickly as possible.” The Breakthrough Therapy designation was granted based on the results of the ongoing phase 1 study assessing the safety, tolerability and preliminary efficacy of DS-8201.
ADCs are a type of targeted cancer medicine that deliver cytotoxic chemotherapy (“payload”) to cancer cells via a linker attached to a monoclonal antibody that binds to a specific target expressed on cancer cells.
In addition to Breakthrough Therapy designation, the U.S. Food and Drug Administration (FDA) has granted Fast Track designation to DS-8201 for the treatment of HER2-positive unresectable and/or metastatic breast cancer in patients who have progressed after prior treatment with HER2-targeted therapies including T-DM1.
DS-8201 is currently in phase 1 clinical development for HER2-positive advanced or metastatic breast cancer and gastric cancer, HER2 low-expressing breast cancer and other HER2-expressing solid tumors.
We are dedicated to transforming science into value for patients, and this sense of obligation informs everything we do.
For more information on Daiichi Sankyo, Inc., please visit: www.dsi.com.

Notebook: Dig Pink gets supersized at Francis Howell; Belleville West wins Quincy title

Notebook: Dig Pink gets supersized at Francis Howell; Belleville West wins Quincy title.
Most schools have one designated “Dig Pink” game night to raise money for breast cancer research.
But six area girls volleyball programs have decided to supersize the event.
Francis Howell will play to host three matches featuring six area teams Saturday to benefit the Side-Out Foundation, a national charity that funds research in stage IV metastatic breast cancer through volleyball events.
“Six different communities, friendly competitions with selling the Dig Pink t-shirts,” Howell coach Stacey Smith said.
“It’s for a good cause and I have the MCC connections.” Added Cor Jesu coach Keith Price, “We’re the only catholic school in the tournament so we thought it would be a way to try to get some interest with all the catholic boys schools to try and get them to come out and support us.” Side-Out has raised more than $12 million since 2004.
Tournament MVP Kaylee Hanger led a team effort at outside hitter.
The Wolves saw a familiar opponent in the championship match of the St. Charles West Tournament on Saturday.
“She’s been a great attacker for us the last two years,” Wagenknecht said.
“We played much better team defense than we played in the past,” Wagenknecht said.

Life BEYOND Breast Cancer:
Advocates + Caretaker Stories


Honoring MaryAnn DiCanto and Scott Primiano’s Story

Breast Cancer Research
Latest news from around the web


8-Year-Old Creates Pink Lemonade Challenge For Breast Cancer Research This July 4

8-Year-Old Creates Pink Lemonade Challenge For Breast Cancer Research This July 4.
A mother to four young children, she was terrified.
The disease had already struck her mother, sister and grandmother.
So is her 8-year-old daughter, Brynne.
She pledged to double Brynne’s impact by matching every dollar she raised through selling the lemonade.
For her first go, Brynne was able to donate a total of $100 to BCRF.
One year later, Brynne is even more determined to make a difference – and wants others to do the same.
With July 4 approaching, she has been challenging others to create a pink lemonade stand on the holiday weekend to support BCRF.
“It can help people like my mom and other breast cancer patients,” she says.
To support Brynne’s second annual “Fight on the Fourth” pink lemonade stand, donate to her efforts here: https://give.bcrfcure.org/pinklemonadefightonthefourth Want take on Brynne’s challenge?

Supporting Childhood Cancer: Symposium 2017

ALSF will be hosting its annual fundraiser for cancer research this year and is coming to four select locations. Each fundraiser will include seminars conducted by top scientists and researchers into the latest developments in cancer research.

Real estate group gives breast cancer research $3m boost

Author: Staff Reporter / Source: realestatebusiness.com.au Professionals Real Estate Group says it is a proud supporter of the National Breast Cancer Foundation’s (NBCF) work. “Our group is keen for the NBCF to achieve its goal of achieving zero deaths from...

Companies that Care
Corporate support makes us possible!


The New York Stock Exchange Goes Beyond Pink with AstraZeneca

Today was a busy day for The Tutu Project!  We met with metastatic breast cancer patient advocacy leaders at AstraZeneca’s roundtable meeting to discuss the challenges the community faces and ways to collaboratively address patient needs. After the meeting, we joined...

Rockin’ a Tutu for a Breast Cancer Fundraiser: The Sports Barre

These lovely ladies joined our #Dare2Tutu campaign this year, donned a tutu,  rocked out to a vigorous workout while raising money for breast cancer!  Thank you, thank you, thank you.  AND, to The Sports Barre in Jersey City, we just sent you a basketful of gratitude...

Cheer Up!
Ideas + Inspiration


Affordable Ways of Inspiring Cheer

Affordable Ways of Inspiring Cheer   Epigenetic research and modern medicine support the claim that laughter is often the best medicine. Research has shown that individuals with a deeper sense of happiness possess lower levels of inflammatory gene responses and...

Exhibition explores role of art therapy in mental health recovery

Exhibition explores role of art therapy in mental health recovery.
“Working Through Art: Visualizing Hope and Recovery Through Art” has been curated by Lindsey Lybrand, a licensed creative art therapist who earned her bachelor of science in child and developmental psychology and studio art in 2009.
The exhibition will open Thursday, Nov. 10, with a reception from 4 to 6 p.m. Also, there will be a walk-through discussion at 4:30 p.m. featuring Lybrand and two Vanderbilt professors with strong expertise in fields related to mental health.
While a senior at Vanderbilt, Lybrand was honored with the Margaret Stonewall Wooldridge Hamblet Merit Award.
She earned a master of arts in art therapy from New York University in 2013.
The artwork represents and reflects a range of diagnoses and symptoms as well as functioning levels, and shows various ways art therapy can be used to address symptoms“The artwork represents and reflects a range of diagnoses and symptoms as well as functioning levels, and shows various ways art therapy can be used to address symptoms of schizophrenia, depression, anxiety, and co-occurring substance-use disorders while empowering the client,” Lybrand said.
All the participating patients in the exhibition have been diagnosed with a psychiatric disorder and are engaged in programming to help them return to work or school or find new housing.
One of the exhibition’s goals is to show how art therapy can be used to help organize, structure and give a voice to concepts that many of the participating clients could find challenging to express verbally.
For more information, email Martha Dale or call (615) 343-7241.
Media Inquiries: Ann Marie Deer Owens, (615) 322-NEWS annmarie.owens@vanderbilt.edu This article was originally published at the “Article” source noted above and distributed by The Tutu Project for informational purposes only.

Art Therapy Roll-A-Feelings Game with Free Art Therapy Game Board Printable

Art Therapy Roll-A-Feelings Game with Free Art Therapy Game Board Printable.
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Click the link below for more information: This article was originally published at the “Article” source noted above and distributed by The Tutu Project for informational purposes only.

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